
i found some energy to break out a mix of traditional supplies and play. it was nice to remember i still "know how".
those bottom two there are about 5.5"x7.5". i don't have names for either one of em. they're both acrylic, cheapo colored pencils, ballpoint, paint markers, and probably some other stuff. elmers glue in there for certain.
IV appointments continued to do me good. i'm not able to leave the house much unless it's for appointments, and these are some of the rare kinds i'm able to look forward to. this was drawn over a picture my wife took.
the rest of the month was just doodlin.
my hands had that fidgety buzz of needing to draw proper CARTOONS all month long, but it felt uniquely unintuitive. abstract stuff like this kept falling out in their wake instead.
to try and ease myself back into the world of Subjects and Forms, i drew over a kibble sketch by my buddy bruce. it helped a good deal. he's got a knack for translating depth of form over to simplicity of line, and it makes everything i struggle with look like kid's stuff. i'll link her stuff later, it's under construction.
i got some practice in. turned 27, too.
march was eventful and strange. there was a lot of fluid in my head, and i was very sick. the buzz just kept getting louder and more demanding, and i had to paint a lot. during a mast cell attack, your histamines go crazy, and it makes you very alert. fatigued, confused, not fully "there", but good luck getting the sleep you need-- you're fucking WIRED, and everything gets coated in this nasty syrupy haze of urgency with no useful target. it's a fever dream. it's miserable.
synesthesia painting provided lots of relief.
this one was a single session. the songs i listened to, in order: this garner version of yesterdays, the loussier version of fugue no. 2, dexter gordon's "where are you?", the live tropicana version of basie's down for double, and finally, ken nordine's confessions of 349-18-5171. piano has a tendency to show up as those green scaffold shapes, and alto sax tends to be BRIGHT indigos and blues. bass is way more colors than you'd think-- it depends on the piece it's in. usually orange, maroon, or DEEP magenta.
i didn't keep a record for what i listened to with this one, unfortunately. i do remember one song in particular that informed the bulk of the piece as i listened to it, though. eternal thursday by aux mages.
we started finding our groove with tooning again, approaching things conservatively and loosely.
then something happened in my neck and head. i had been folding laundry, and i guess i looked down a little too far to the right. painful tear, burst of fluid. some of it leaked out of my ears. we went to the ER, but after an unremarkable CT, they sent me back home.
walking and being upright got much harder again after that. back to bedbound state.
meanwhile, arch percolates and iterates.
things start looking a little different inside. when struggling to make sense of space on my own, i can use pictures.pain kept getting worse after we got home from the hospital, and my mobility was pretty shot. that buzzing from months prior kept getting louder and louder. it didn't feel like creative agitation anymore, just fever. i did what i could to cry and paint it out.
it got too hard to use my right hand, so i switched to left. a little after that one, i had a seizure. i thought i'd fainted-- it's the most familiar form of lost consciousness to me-- but my wife told me my eyes were wide open, body rigid and jerkin all around. ten seconds, and then i was ok. i'm racking up new experiences very quickly.i slept for a long time, woke up, sneezed, and puked out just about everything my body couldve. we went to the ER again. they ended up holding us for 4 days this time. my liver enzymes were crazy high. healthy range for ALT is like... what, 20-30? mine was 700. not the first time this has happened, but the highest it's ever been.
they took a bunch of blood, ran a bunch of tests, and everything came up as inconclusive as i'm used to. after my liver gathered herself to a safe extent, they sent me back home. averaging about 6 hours of awake-time a day since then, and mostly in bed.
all of these symptoms line up already with the existing MCAS diagnosis, but i guess i'll have to see if that'll "mean something" to enough doctors in the time necessary for it to amount to the consistent treatment i need. i've gotten close in the past, but there's been some manner of rugpull every time, and i can only afford to get my hopes so high. i'm open to surprise.
but art stays enjoyable. doodled RJ in varying modes.
and JB, on that mabel-to-kibble slider.i would like the hurt to stop, but i accept the possibility that it never does. now is the time to take some notes from bob flanagan. i am a master of managing pain, but with conditions of this nature, i think there may always be some new, previously inconceivable threshold of pain that i'll be barrelling through between periods of rest.
when i can't stop pain from happening, i can still decide what pain means.
last for the month, an updated arch sheet that we plugged away at when we could.
starting the month trying to keep head on straight. waiting on more appts. tired. heres pictures. just painlogging.
mothers day came and went in the way it does.
5.11.26 i am not sleeping well. here are quick paintings from memories.
cervical mri looked clear. some more appointments+tests in coming weeks. think i just get to rest this week. hope so!
think the next one coming up is an angiogram. had a lot of stuff done, but there's one i haven't done yet. i never "look forward" to procedures per se, but i appreciate the extra wordly contexts that they give me.
5.14.26 here's a meditation piece. canvases that start wild and make a habit of wrangling themselves in usually means a lot of talking, and a lot of handshakes happening on the neural front.
5.16.26 i am not "discovering", so much as relearning and becoming more resolute in, my understandings of pain you can't reason with.
it still passes once it's heard. i don't resent it. bodies only send the signals that they think they're supposed to. sometimes you can really guide this stuff by the hand, and sometimes trying to do so makes you look and feel as stupid as someone trying to make rhetorical appeals to a screaming baby. nothing to do but cradle and rock it back to sleep.
05.21.26.
start & stop.
then skyliner, a fav barnet track...
then, basie and charlie parker! listen to this and tell me you don't get it!! i dare ya! and yeah i hate the album cover too. this doodle was made as an example to myself-- some kinds of music just take more visual precedent and communicate more strongly than others. bluegrass and old country doesn't fill my whole sphere of cognition with colors and shapes the way jazz does-- instead, it tends to really ground me to the world under my feet. i like doin chores with stuff like this. now, you be careful listening to spade, because youtube will be giving you recommendeds for weeks about how he killed his second wife. total monster. now you know, if you didn't. im sorry. JB + a growin adelaide. appointments stayed frustrating... but we got official diagnoses for EDS, POTS and MCAS this month -- that nasty but highly informative triply whammy. we take the relief of small victories and the resources it opens up.started with a quick JB + clay.
mabel faces left and holds a beer, to the delight and excitement of many.
cif makes a quick appearance... as does kibble. this isn't one of ours. this is a trafalmadorian. slaughterhouse just may be my favorite book in the world. lastly, we downloaded artset this month! knocked me clean on my butt. i didn't have a good grasp on how sophisticated digital versions of traditional mediums had GOTTEN. did a lot of JB portraits to get a feel for all the stuff the program has in it. a particularly kibble-flavored JB... a heavy mabel lean... and gene's turn at the wheel.to start, irving.
then clarice. i don't hate this one, but it's way too yellow! or just yellow enough. it was a really yellow-orange type of may. arch, cece, JB and clay havin a nap. lackluster final piece by my own account, but wholly satisfactory for all the experimentation it brought on. then insurance. i don't even remember what denial this was. i stayed true to jar jar's challenge, and that's all i care about. more artset playing. a rare gene picture. and: conrad returns! turtleneck and lucky in tow. reliably as ever: irving also returns. finally, a kibble sheet.the air quality was bad, the way it has been the past few summers. this was the year i learned to accept it as the new normal, i think.
when inflammation and the buildup of mast cell nonsense starts attacking my spine and brain in particular, everything in me folds a bit inward. this can look like a lot of things, but often it looks like certain parts becoming small. some irving notes. i don't do fanart much-- there just aren't many things that spark the urge in me-- but i still get a kick out of trying to make sly char designs fit my own sensibilities. here's the contessa from sly 2 because no one else ever knows a fine woman when they see one, APPARENTLY. theres like, negative six pieces of fanart for this nasty bug some expression goofs with cece... some really LOUD stomach-acid-triangles... a display of mindful respect... and objects.irv is a great coach.
this is actually a gaggle of doodles both recent and old, all slapped onto one canvas. i like doin that. i try not to chuck too many sketches that don't entice me right away, because theres always a chance theyll be the perfect little roof-tile to balance a composition. love the way you can scrapbook cohesive sequences of elements together. it's a fun puzzle to look for parallels in the negative spaces between subjects when i put em beside each other.
got a portrait of arlow in. doodle of clay and cece. a very JB-leaning gene. or gene-leaning JB? on the whole, more oscillation. fainting, fevers. the smallsaga continues. lastly, here's this thing for you.fevers continued. despite it all, i drew a crazy amount this month. sometimes sickness means i can't pick up a pencil for shit, and sometimes it's the only thing i'm capable of doing. consistency of symptoms is REALLY not the name of the game where the neurospinal and immunological are concerned.
i started with this. i still can't tell you much about it.
joybot's new game.
play therapy.
space, and lots of JB+clay.
clayton divulges hidden proficiencies as a moe scholar.a rare look of cece on the outside.
arch and JB do what you're supposed to do with a sunbeam.
arlow and JB do what you're supposed to do with the rest.and, one of the last doodles i'd do of a putty character before i realized my relationship with stories in the current sociopolitical climate was souring too deeply and too quickly to have interest in making one.
wrapped up the month with more sick-in-bed drawing.
good lord! this mightve been the busiest month of the year, art-wise.
to start, baby joybot learns ants. supplemental listening material for image.
this year the gang goes trick or treating in free country USA. as a matter of cultural awareness and in honor of their forefathers, they assume the typical stand-in-field position.
clayton and JB (+grilchease) and JB with nobody. then, an attempt at stylizing spinal brace in a way i like. mixed results. a sitting portrait of clarice. a jumble of abstract pieces, too. another larval JB (sorry vonnegut!) and hey, that looks like otto! i think...? oh! whoops the only naivety i fell victim to was thinkin we would be "done with this". i AM "this"!this last one was a sketch from 2023, but finished.
i'd been on T for a minute, but i suppose i'd still read as "female" to people up until that point. when i got home, i remember the process of thinking out loud to my wife. i really had to choke the words out. "christ, i think i might be a man!" it didn't sting as bad as i thought it would. i guess i didn't realize i thought anything about it at all! it's crazy how deep we can bury stuff.
so, naturally, it was time to keep transitioning. i chose the name Roy. this has always been an instruction and a prerequisite to hanging out, after all.
this pink spider, the reborn Dottie, would later become named Kibble. you can still call him roy though, it's not technically wrong-- roy just looks like a lot of other stuff, too.